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成年自闭症患者在工作场所披露诊断结果的经历:决策过程及与结果相关的因素。

Autistic adults' experiences of diagnostic disclosure in the workplace: Decision-making and factors associated with outcomes.

作者信息

Romualdez Anna Melissa, Walker Zachary, Remington Anna

机构信息

Centre for Research in Autism and Education (CRAE), UCL Institute of Education, University College London, London, UK.

Department of Psychology and Human Development, UCL Institute of Education, University College London, London, UK.

出版信息

Autism Dev Lang Impair. 2021 Jun 4;6:23969415211022955. doi: 10.1177/23969415211022955. eCollection 2021 Jan-Dec.

Abstract

Autistic individuals often struggle to find and maintain employment. This may be because many workplaces are not suited to autistic individuals' needs. Among other difficulties, many autistic employees experience distracting or disruptive sensory environments, lack of flexibility in work hours, and unclear communication from colleagues. One possible way of mitigating these difficulties is for employees to disclose their diagnosis at work. While disclosure may increase understanding and acceptance from colleagues, it can also lead to discrimination and stigma in the workplace. Research has shown that disclosure outcomes are often mixed, but it is unclear what factors are associated with either positive or negative outcomes of disclosure for autistic people. This study aimed to identify these factors and explore the reasons why autistic employees choose to disclose or to keep their diagnosis private. Semi-structured interviews were conducted with 24 clinically-diagnosed autistic adults (12 male and 12 female) who were currently, or had been, employed in the UK (mean age = 45.7 years). Through thematic analysis, we identified three main themes under experiences of disclosure: 1) A preference for keeping my diagnosis private; 2) The importance of disclosure in the workplace; and 3) Disclosure has mixed outcomes. We also identified three factors associated with disclosure outcomes: and These results have implications for improving inclusive practices on both the individual and organisational level to ensure more positive disclosure experiences for autistic employees.

摘要

自闭症患者往往难以找到并保住工作。这可能是因为许多工作场所不适合自闭症患者的需求。在诸多困难之中,许多自闭症员工会经历干扰性或破坏性的感官环境、工作时间缺乏灵活性以及同事沟通不清晰等问题。缓解这些困难的一种可能方式是员工在工作中披露自己的诊断情况。虽然披露可能会增加同事的理解和接纳,但也可能导致工作场所的歧视和污名化。研究表明,披露的结果往往好坏参半,但尚不清楚哪些因素与自闭症患者披露的积极或消极结果相关。本研究旨在确定这些因素,并探讨自闭症员工选择披露或隐瞒自己诊断情况的原因。对24名在英国目前或曾经就业的临床诊断为自闭症的成年人(12名男性和12名女性)进行了半结构化访谈(平均年龄 = 45.7岁)。通过主题分析,我们在披露经历中确定了三个主要主题:1)倾向于隐瞒自己的诊断情况;2)在工作场所披露的重要性;3)披露有好坏参半的结果。我们还确定了与披露结果相关的三个因素:以及 这些结果对于在个人和组织层面改进包容性做法具有启示意义,以确保自闭症员工有更积极的披露经历。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/8c36/9620671/8a2c0b366d44/10.1177_23969415211022955-fig1.jpg

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