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约旦自闭症谱系障碍儿童家长的生活质量:一项比较研究。

Parents of children with autism spectrum disorder quality of life in Jordan: a comparative study.

作者信息

Kasem Abedallah, Abuhammad Sawsan, Jamal Naemah

机构信息

Department of Maternal and Child Health, Faculty of Nursing, Jordan University of Science and Technology, P.O. Box 3030, Irbid 22110, Jordan.

出版信息

Future Sci OA. 2024 May 15;10(1):FSO909. doi: 10.2144/fsoa-2023-0096. eCollection 2024.

Abstract

This study aimed to assess the quality of life (QoL) of parents of children with autism spectrum disorder (ASD) in Jordan and its associated factors. This comparative study was conducted among parents of children with ASD and non-ASD. Data collection took four setting areas that include three centers for autism in three different municipalities and the control group was collected using social media. A convenience sample of 242 parents agreed to complete a QoL questionnaire. Parents of children with ASD in Jordan have poor QoL across the five domains of QoL in compare with parents with non-ASD child. Factors such as gender, level of education, living condition and employment status were found impacting QoL.

摘要

本研究旨在评估约旦自闭症谱系障碍(ASD)儿童家长的生活质量(QoL)及其相关因素。这项比较研究在ASD儿童家长和非ASD儿童家长中进行。数据收集在四个地点进行,包括三个不同城市的三个自闭症中心,对照组通过社交媒体收集。242名家长的便利样本同意完成一份生活质量问卷。与非ASD儿童的家长相比,约旦ASD儿童的家长在生活质量的五个领域中生活质量较差。研究发现,性别、教育程度、生活条件和就业状况等因素会影响生活质量。

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