儿科姑息治疗个体护理计划的实际应用：一项混合方法研究。
The Practical Application of the Individual Care Plan for Pediatric Palliative Care: A Mixed-Method Study.
作者信息
Joren Chantal Y, Aris-Meijer Judith L, Kremer Leontien C M, Hofman Suzanne C, Rippen-Wagner Hester, Slingerland-Blom Ria, van der Velden Chantal, Schuiling-Otten Meggi A, Verhagen A A Eduard, Kars Marijke C
机构信息
University of Groningen, University Medical Center Groningen, Beatrix Children's Hospital, Hanzeplein 1, 9713 GZ Groningen, The Netherlands.
Princess Maxima Centre for Pediatric Oncology, Heidelberglaaan 25, 3584 CS Utrecht, The Netherlands.
出版信息
Children (Basel). 2024 Aug 11;11(8):967. doi: 10.3390/children11080967.
BACKGROUND/OBJECTIVE: The Individual Care Plan (ICP) for pediatric palliative care was developed to provide person-centered care for the individual child and family. Currently, a lack of clarity remains regarding the use and function of the ICP in daily practice. To further implement the ICP, it is important to identify how parents and healthcare professionals use the ICP and which obstacles or benefits are experienced.
METHODS
This mixed-method study used qualitative interviews and quantitative questionnaires in (bereaved) parents and healthcare professionals with experience with the ICP.
RESULTS
Parents and healthcare professionals used the ICP to establish a joint plan for care and treatment of the child to coordinate care and to achieve child- and family-centered care. This includes both obstacles that complicate achieving care goals and benefits that make it easier. Furthermore, responsibilities for the ICP remained unclear, and there was no set point in the illness trajectory for drawing up the ICP.
CONCLUSIONS
Parents and healthcare professionals use the ICP as intended. However, uncertainties regarding timing, roles and responsibilities prevent optimal use of the ICP. Agreements on timing and responsibilities are needed for further ICP implementation in daily pediatric palliative care practice.
背景/目的：制定儿科姑息治疗的个性化护理计划（ICP）是为了为每个儿童及其家庭提供以患者为中心的护理。目前，关于ICP在日常实践中的使用和功能仍不明确。为了进一步实施ICP，确定父母和医疗保健专业人员如何使用ICP以及经历了哪些障碍或益处很重要。
方法
这项混合方法研究对有ICP经验的（丧亲）父母和医疗保健专业人员进行了定性访谈和定量问卷调查。
结果
父母和医疗保健专业人员使用ICP来制定儿童护理和治疗的联合计划，以协调护理并实现以儿童和家庭为中心的护理。这既包括使实现护理目标复杂化的障碍，也包括使其更容易实现的益处。此外，ICP的职责仍不明确，并且在疾病轨迹中没有确定制定ICP的时间点。
结论
父母和医疗保健专业人员按预期使用ICP。然而，关于时间安排、角色和职责的不确定性阻碍了ICP的最佳使用。在儿科姑息治疗日常实践中进一步实施ICP需要就时间安排和职责达成一致。
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