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自闭症患者的共情体验与自闭症共情缺陷叙事

Autistic People's Experience of Empathy and the Autistic Empathy Deficit Narrative.

作者信息

Kimber Lesley, Verrier Diarmuid, Connolly Stephen

机构信息

Department of Psychology, Sociology, and Politics, Childhood, and Inclusion, Sheffield Hallam University, Sheffield, United Kingdom.

Department of Education, Childhood, and Inclusion, Sheffield Hallam University, Sheffield, United Kingdom.

出版信息

Autism Adulthood. 2024 Sep 16;6(3):321-330. doi: 10.1089/aut.2023.0001. eCollection 2024 Sep.

Abstract

BACKGROUND

There is a dominant discourse, both in clinical texts and throughout the academic literature, that autistic people lack empathy; however, over the past decade, both clinicians and academics have increasingly rejected deficit-based descriptions of autism in favor of more nuanced explanations of the experience of autistic individuals in a social world.

METHODS

This study asked 76 autistic individuals about their own experience of empathy and the oft-cited empathy deficit. Data were thematically analyzed and revealed a wide array of empathic self-concepts among respondents.

RESULTS

Notably, there was a high proportion of hyper-empathic experiences. Many respondents reported their empathic responses to be overwhelming, or even distressing. These different experiences of empathy contrast with societal expectations of empathy, which often result in additional labor for autistic people as they navigate the non-autistic centered world.

CONCLUSION

Although the academic literature is, in some areas, slowly moving away from a deficit perspective, more broadly there is still a negative impact from misconceptions around autistic people and empathy. Further work needs to be done to not only explore this misconception at a societal (rather than academic) level, but also better bridge the gap around the changing ideas of empathy and real-world understanding of autistic empathy.

摘要

背景

在临床文本和整个学术文献中,存在一种主流观点,即自闭症患者缺乏同理心;然而,在过去十年中,临床医生和学者越来越多地摒弃了基于缺陷的自闭症描述,转而支持对自闭症个体在社会世界中的经历进行更细致入微的解释。

方法

本研究询问了76名自闭症患者关于他们自己的同理心体验以及常被提及的同理心缺陷。对数据进行了主题分析,结果显示受访者中存在各种各样的同理心自我概念。

结果

值得注意的是,有很大比例的超同理心体验。许多受访者表示他们的同理心反应过于强烈,甚至令人痛苦。这些不同的同理心体验与社会对同理心的期望形成对比,这往往给自闭症患者在以非自闭症患者为中心的世界中生活带来额外的负担。

结论

尽管学术文献在某些领域正慢慢摆脱缺陷视角,但更广泛地说,围绕自闭症患者和同理心的误解仍然存在负面影响。不仅需要在社会(而非学术)层面探讨这种误解,还需要更好地弥合同理心观念的变化与对自闭症患者同理心的现实理解之间的差距。

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