McLaughlin Brooke T, Bruce Martha L, Tanski Susanne E
Department of Community and Family Medicine, Dartmouth Health, Lebanon, NH, USA.
Dartmouth Health Children's, Lebanon, NH, USA.
J Patient Exp. 2025 Mar 13;12:23743735251321238. doi: 10.1177/23743735251321238. eCollection 2025.
In response to the needs of families of children with attention-deficit/hyperactivity disorder (ADHD), we set out to create a carefully designed and evidence-informed parent tool (The ADHD Playbook) with the goal to increase parental knowledge and confidence around effective engagement in the care of their child with ADHD. Evidence suggests that families do better when parents are actively engaged in leading their child's care team, serving as confident and informed caregivers and advocates. To this end, the ADHD Playbook was developed to fit unmet educational needs and is based on current guidelines from The American Academy of Pediatrics, review of the literature, parent/physician feedback, and professional design to ensure a user-centered focus. As the Playbook is intended for use in the primary care setting and at the time of ADHD diagnosis, the Playbook fulfills a time-critical need for families. This Playbook holds promise for broad public health impact due to easy scalability and the potential to decrease barriers to care and increase equity via semisubspecialty resources offered in the primary care setting.
为满足注意力缺陷多动障碍(ADHD)儿童家庭的需求,我们着手创建一个精心设计且基于证据的家长工具(《ADHD 行动指南》),目标是增加家长在有效参与其 ADHD 患儿护理方面的知识和信心。有证据表明,当家长积极参与领导孩子的护理团队,作为自信且了解情况的照料者和倡导者时,家庭状况会更好。为此,《ADHD 行动指南》的制定是为了满足未被满足的教育需求,它基于美国儿科学会的现行指南、文献综述、家长/医生反馈以及专业设计,以确保以用户为中心。由于该行动指南旨在用于初级保健环境以及 ADHD 诊断之时,它满足了家庭的一项时间紧迫的需求。由于易于扩展,并且有可能通过初级保健环境中提供的半专科资源减少护理障碍并提高公平性,该行动指南有望对广泛的公共卫生产生影响。