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印度针对癌症临终患者的姑息治疗与临终关怀举措:一项叙述性综述

Palliative and end-of-life care initiatives for people dying from cancer in India: a narrative review.

作者信息

Salins Naveen, Rao Krithika, Damani Anuja, Bhatnagar Sushma, Simha Srinagesh

机构信息

Medicine and Supportive Care, Kasturba Medical College, Manipal Academy of Higher Education, Manipal 576104, Karnataka, India.

The Department of Onco-Anaesthesia and Palliative Medicine, Institute Rotary Cancer Hospital, All India Institute of Medical Sciences, Delhi 110029, India.

出版信息

Ecancermedicalscience. 2024 Dec 12;18:1822. doi: 10.3332/ecancer.2024.1822. eCollection 2024.

Abstract

India is facing a growing burden of cancer, resulting in high cancer-associated mortality. However, the rise in cancer incidence is disproportionately high compared to access and provision of palliative care. This review aims to identify gaps in Indian cancer palliative care and recognises initiatives instituted to mitigate them. The narrative review was conducted using the four-step method described by Demiris et al., synthesising both empirical and non-empirical literature. A lack of capacity to provide palliative care was identified as a significant barrier. Initiatives such as setting up palliative care services in cancer treatment centres, improving community palliative care access, structured palliative care training to develop specialists, improving opioid availability and creating policies have been helpful. A significant proportion of people in India experience health-related suffering, and developing a tool to identify this suffering proactively would be beneficial. Several cancer centres are testing integrated cancer palliative care models in various cancer subsites. However, these are preliminary works and are yet to be established. People in India face distress due to high health-related costs, and initiatives like hospices and home-based palliative care services with no cost to patients and families provide significant relief. Caregivers experience a considerable burden while caring for their loved ones with life-limiting illnesses, and they are supported through respite palliative care services offered in some parts of India.

摘要

印度正面临着日益沉重的癌症负担,导致与癌症相关的高死亡率。然而,与姑息治疗的可及性和提供情况相比,癌症发病率的上升比例过高。本综述旨在找出印度癌症姑息治疗中的差距,并认可为缓解这些差距而采取的举措。采用德米里斯等人描述的四步法进行叙述性综述,综合实证和非实证文献。提供姑息治疗的能力不足被确定为一个重大障碍。在癌症治疗中心设立姑息治疗服务、改善社区姑息治疗的可及性、开展结构化姑息治疗培训以培养专科医生、改善阿片类药物的供应以及制定政策等举措都很有帮助。印度很大一部分人经历着与健康相关的痛苦,开发一种工具来主动识别这种痛苦将是有益的。几个癌症中心正在不同癌症亚部位测试综合癌症姑息治疗模式。然而,这些都是初步工作,尚未确立。印度人因高昂的健康相关费用而面临困境,临终关怀医院和为患者及家属提供免费服务的居家姑息治疗服务等举措提供了极大的缓解。照顾患有危及生命疾病的亲人时,照顾者会承受相当大的负担,印度一些地区提供的喘息姑息治疗服务为他们提供了支持。

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