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一项关于乳腺癌女性生育力保存经历的定性研究。

A Qualitative Study of Fertility Preservation Experience in Women with Breast Cancer.

作者信息

Wang Zilian, Yang Xinyi, Hong Xia, He Yu, Xu Aike, Jiang Xuechun, Wei Qun

机构信息

Reproductive Medicine Center, Sir Run Run Shaw Hospital, School of Medicine, Zhejiang University, Hangzhou, Zhejiang, People's Republic of China.

出版信息

Int J Womens Health. 2025 Apr 23;17:1143-1155. doi: 10.2147/IJWH.S517901. eCollection 2025.

Abstract

OBJECTIVE

To explore the experiences of women with breast cancer who have undergone fertility preservation and to explore the psychological needs of patients.

METHODS

Using descriptive phenomenological research methods, 11 patients who underwent oocyte or embryo cryopreservation after diagnosis of breast cancer were selected for semi-structured interviews in a tertiary care hospital. Themes were distilled using Colaizzi's 7-step analysis and reported according to COREQ guidelines.

RESULTS

The experiences of women with breast cancer who underwent fertility preservation can be categorized into 4 themes and 11 sub-themes: a. Physical pain and discomfort (physiological pain, tolerance of physical discomfort); b. heavy psychological burdens (fertility worries, self-blame and guilt, loneliness and helplessness, bias from others and self); c. Actively seeking and benefiting from ways of coping with illness (life over procreation; hope, confidence and courage; positive coping with illness; adequate social support; growth follow in adversity); d. Lack of fertility-related information support.

CONCLUSION

Oncology and reproductive health professionals should pay attention to the experiences of breast cancer patients undergoing fertility preservation and target timely, scientific, and effective interventions to promote disease recovery and improve quality of life.

摘要

目的

探讨接受生育力保存的乳腺癌女性的经历,并探究患者的心理需求。

方法

采用描述性现象学研究方法,选取在一家三级护理医院诊断为乳腺癌后接受卵母细胞或胚胎冷冻保存的11例患者进行半结构式访谈。使用科莱齐的七步分析法提炼主题,并根据COREQ指南进行报告。

结果

接受生育力保存的乳腺癌女性的经历可分为4个主题和11个子主题:a. 身体疼痛与不适(生理疼痛、对身体不适的耐受性);b. 沉重的心理负担(生育担忧、自责与内疚、孤独与无助、他人及自我偏见);c. 积极寻求并受益于应对疾病的方式(生命高于生育;希望、信心与勇气;积极应对疾病;充分的社会支持;逆境中的成长);d. 缺乏生育相关信息支持。

结论

肿瘤学和生殖健康专业人员应关注接受生育力保存的乳腺癌患者的经历,并进行及时、科学、有效的干预,以促进疾病康复,提高生活质量。

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