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成人自闭症诊断的经历:基层认识论在临床环境中的作用。

Experiences of an Autism Diagnosis in Adulthood: The Role of Grassroots Epistemology in Clinical Settings.

作者信息

Superson Weronika, Prokopiak Anna, Wodziński Maciej

机构信息

Department of Special Psychopedagogy, Institute of Pedagogy, Faculty of Pedagogy and Psychology, Maria Curie-Skłodowska University, Gł˛eboka 43, 20-612 Lublin, Poland.

Department of Ontology and Epistemology, Institute of Philosophy, Faculty of Philosophy and Sociology, Maria Curie-Skłodowska University, Maria Curie-Skłodowska Sq. 4, 20-031 Lublin, Poland.

出版信息

J Clin Med. 2025 Jun 17;14(12):4315. doi: 10.3390/jcm14124315.

Abstract

Our research problem mainly concerns the following question: what are the consequences of an autism spectrum condition diagnosis for everyday functioning and self-understanding? The research methodology is based on a semi-structured interview, which allows respondents to share their experiences freely while maintaining the structure and standards necessary to collect consistent data. The research was conducted remotely, using the ZOOM platform and the Messenger application. Six individuals with autism spectrum condition (ASC) diagnosed in adulthood, selected intentionally, participated in the study. Interviews lasted between 20 and 60 min. The analysis of the experiences of individuals with ASC diagnosed in adulthood highlights the complexity of the diagnosis process and its far-reaching consequences. The diagnostic process, which varied in time and depended on the availability of specialists, was often evaluated positively. Obtaining an ASC diagnosis proved to be a crucial moment for the interviewees, enabling them to better understand themselves and their needs. It led to a better adjustment of their work, education, and private life environment. Relationships with loved ones tended to remain unchanged or improved, highlighting the importance of the diagnosis in improving the understanding and acceptance of individuals with ASC. The study sheds light on the positive impact of diagnosis on self-awareness and quality of life for individuals with ASC, revealing the need to improve the availability of specialised diagnostic and support services. Further research should focus on the development and adaptation of support methods to meet the individual needs of individuals with ASC and on promoting awareness of ASC in the community and among mental health professionals.

摘要

我们的研究问题主要涉及以下问题

自闭症谱系障碍诊断对日常功能和自我认知有哪些影响?研究方法基于半结构化访谈,这种访谈允许受访者自由分享他们的经历,同时保持收集一致数据所需的结构和标准。研究通过ZOOM平台和Messenger应用程序远程进行。六名成年后被诊断为自闭症谱系障碍(ASC)的个体被有意挑选出来参与了这项研究。访谈持续了20到60分钟。对成年后被诊断为ASC的个体的经历分析突出了诊断过程的复杂性及其深远影响。诊断过程在时间上各不相同,取决于专家的可及性,但其评价往往是积极的。获得ASC诊断对受访者来说是一个关键时刻,使他们能够更好地了解自己及其需求。这导致他们在工作、教育和私人生活环境方面有了更好的调整。与亲人的关系往往保持不变或得到改善,这突出了诊断在增进对ASC个体的理解和接纳方面的重要性。该研究揭示了诊断对ASC个体的自我意识和生活质量的积极影响,表明需要提高专门诊断和支持服务的可及性。进一步的研究应侧重于开发和调整支持方法,以满足ASC个体的个人需求,并提高社区和心理健康专业人员对ASC的认识。

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