Living with brain metastasis - a qualitative study of patients' and family members' coping strategies.

BACKGROUND

Brain metastases are a serious complication of advanced cancer, often impairing patients' neurological function, quality of life, well-being, and prognosis. They also place a heavy emotional burden on family members. Coping strategies play a crucial role in reducing stress, supporting emotional well-being, and adapting to these challenges. Gaining insight into how patients and families cope is important for developing person- and family-centred interventions.

AIM

To explore similarities and differences in coping strategies between patients with newly diagnosed brain metastases and their family members from diagnosis to four months thereafter.

METHODS

The study has a qualitative, exploratory, longitudinal design. Between 2019 and 2021, 81 individual interviews were conducted with patients and their family members. Data were analysed using a secondary thematic analysis.

RESULTS

The analysis revealed two main themes: Willpower - taking control of the mind, and Reframing life - here-and-now versus long-term plans. While patients exhibited willpower and took control over their minds, focusing on the present moment, family members emphasised reframing life by balancing the immediate needs and information seeking with long-term planning.

CONCLUSIONS

Patients and family members employ distinct coping strategies. Recognising these differences provides a foundation for tailored, person- and family-centred interventions aimed at improving quality of life.