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囊性纤维化患儿的心理社会问题

Psychosocial problems in children with cystic fibrosis.

作者信息

Bregnballe V, Thastum M, Schiøtz P O

机构信息

Department of Pediatrics, Aarhus University Hospital, Skejby Sygehus, Denmark.

出版信息

Acta Paediatr. 2007 Jan;96(1):58-61. doi: 10.1111/j.1651-2227.2006.00014.x.

Abstract

AIM

To compare the well-being of children (7-14 years) with cystic fibrosis (CF) (n = 43) with the well-being of healthy controls (n = 1121).

METHODS

The self-report questionnaire Beck Youth Inventories (BYI) was used to study depression, anxiety, anger, disruptive behaviour and self-concept in children with CF. A measure of social desirability was included as well as body mass index (BMI) and percentage of predicted forced expiratory volume in one second (FEV(1)) as measures of health status.

RESULTS

The children with CF did not differ from the norm group concerning depression, disruptive behaviour and self-concept. Young children with CF (7-10 years) and boys with CF scored significantly higher on anxiety. Girls with CF scored significantly lower on anger than controls. BMI was not associated with any of the BYI subscales. In patients aged 11-14 years, there was a significant correlation between FEV(1) and self-concept as well as a significant inverse correlation between FEV(1) and anxiety.

CONCLUSIONS

Younger children with CF and boys with CF were more anxious than the healthy controls, and girls with CF expressed less anger than their healthy peers. Effects sizes however were small. Low FEV(1) was associated with low self-concept and high anxiety in adolescent patients.

摘要

目的

比较43例囊性纤维化(CF)患儿(7 - 14岁)与1121例健康对照儿童的健康状况。

方法

采用自填式问卷贝克青少年量表(BYI)研究CF患儿的抑郁、焦虑、愤怒、破坏性行为和自我概念。纳入社会期望性测量指标,以及体重指数(BMI)和一秒用力呼气容积占预计值百分比(FEV₁)作为健康状况指标。

结果

CF患儿在抑郁、破坏性行为和自我概念方面与正常组无差异。CF患儿中的年幼儿童(7 - 10岁)和男孩焦虑得分显著更高。CF患儿中的女孩愤怒得分显著低于对照组。BMI与任何一个BYI分量表均无关联。在11 - 14岁的患者中,FEV₁与自我概念之间存在显著相关性,FEV₁与焦虑之间存在显著负相关性。

结论

CF患儿中的年幼儿童和男孩比健康对照更焦虑,CF患儿中的女孩比健康同龄人表达的愤怒更少。然而效应量较小。低FEV₁与青少年患者的低自我概念和高焦虑相关。

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