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“这是参与一个宏大的传统、一个宏大的反文化的一部分,其中包括社区”:对自闭症社区联系的定性研究。

'It's being a part of a grand tradition, a grand counter-culture which involves communities': A qualitative investigation of autistic community connectedness.

机构信息

University of Stirling, UK.

University of Surrey, UK.

出版信息

Autism. 2022 Nov;26(8):2151-2164. doi: 10.1177/13623613221080248. Epub 2022 Mar 23.

Abstract

A sense of being connected to other autistic people has been reported anecdotally. Friendships and connectedness may be important to autistic people and beneficial for their wellbeing. Our research aimed to understand the autistic community by interviewing 20 autistic people about their experiences of being connected to other autistic people. Participants were interviewed in person, over video, using a text-based software to type or over email. Participants detailed three parts of autistic community connectedness: a sense of belonging, social connection with autistic friends and political connectedness. The friendships autistic people had with one another were deemed to be very important to participants because it gave them confidence, provided companionship and made them happy. Some participants did not experience connectedness to the autistic community. These participants also found autism to be less important to their identity and had fewer positive feelings about being autistic. This research is important as it raises awareness that community connectedness is viewed as important to this group. It is possible that community connectedness may help protect the mental health of autistic people when they face stigma or negative life experiences in society.

摘要

据报道,与其他自闭症患者建立联系的感觉是存在的。友谊和联系对自闭症患者可能很重要,有益于他们的幸福感。我们的研究旨在通过采访 20 名自闭症患者,了解他们与其他自闭症患者建立联系的经历,从而了解自闭症群体。参与者通过面访、视频、基于文本的软件打字或电子邮件接受了采访。参与者详细描述了自闭症群体联系的三个部分:归属感、与自闭症朋友的社交联系和政治联系。自闭症患者彼此之间的友谊被认为对参与者非常重要,因为它给了他们信心,提供了陪伴,让他们感到快乐。一些参与者没有与自闭症群体建立联系。这些参与者也发现自闭症对他们的身份认同感并不重要,对自己是自闭症患者的感受也不那么积极。这项研究很重要,因为它让人们意识到,与自闭症群体建立联系对这一群体来说很重要。当自闭症患者在社会中面临污名化或负面生活经历时,群体联系可能有助于保护他们的心理健康。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/10a8/9597163/8a18d9cdf60f/10.1177_13623613221080248-fig1.jpg

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